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7 comments.

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«anonymous»

Comment on Clinical Information Standards Specification Overview of Clinical Information Standards

  • Comment ID: 57
I have news for you Nick - throwing mud at a wall doeen't work as you should know from the likes of NHSpfIT, Care.data etc. as well as the fact that existing patient data is accessed illegally within the NHS. As with other programmes, there won't be a proper risk assessment and billions will be wasted. This time listen to the experts.
«anonymous»

Comment on Clinical Information Standards Specification Overview of Clinical Information Standards

  • Comment ID: 54
Very much not a fan of the idea here that information at patient-level granularity can flow all the way through the system to people who don't need, and really shouldn't have, access to it. Can't help but notice that this plan is being pushed by an MP who's already shown that data protection is not his forte, when the "Matt Hancock App" ran roughshod over the GDPR and that suggests that it really shouldn't be carried out in its' present form
«anonymous»

Comment on Clinical Information Standards Specification Overview of Clinical Information Standards

  • Comment ID: 2
I feel its really important to draw distinctions between the information standards and their use/benefits because they are not one and all serving the same purpose. From what I can deduce SNOMED is used by clinicians at point of care so surely this is what leads to the first, third and fifth bullet points and that classifications can not do as well but the classifications are perfect and proven for points 2, 4 and 6. So its important the vision draws these distinctions and that going forward eac
«anonymous»

Comment on Clinical Information Standards Specification Overview of Clinical Information Standards

  • Comment ID: 53
How can I opt out of any and all data sharing? This is MY data, not yours. It is private and personal. Without my express permission you should not be able to share anything. Something is either anonymous or not, pseudo anonymous is obfuscating the fact that it is not anonymous. Its like being a virgin. You either are or aren't. It's either anonymous or its not. There must be an easy, clear and transparent way of opting out of any and all data sharing.
«anonymous»

Comment on Clinical Information Standards Specification Overview of Clinical Information Standards

  • Comment ID: 55
This is wrong, people guard their health information tightly, only trusting it with medical staff who are charged with guarding it's confidentiality. This will remove our choice of who we share OUR data with. It must be made cleaqr how to opt out of this and how to check the opt-out has been actioned. Ideally, it should be opt-in. I'm afraid that all will happen is people will give false details, which won't help anyone.
«anonymous»

Comment on Clinical Information Standards Specification Overview of Clinical Information Standards

  • Comment ID: 58
If this proposal was at all honest it would state that the aim of the exercise is to grab as much raw data as possible so that it can then be sold to big pharma and so be used to offset the cost of the NHS to the taxpayer as per the ideological aims of the libertarian right. Everything else in this is just typical NHS management babble -pretending to explain but actually obfuscating the real intent. As an aside, why is this supposedly public comment area hosted on an obscure non NHS platform -
«anonymous»

Comment on Clinical Information Standards Specification Overview of Clinical Information Standards

  • Comment ID: 62
The overriding shift that needs to take place is moving from coding for financial reasons to coding for patient care and service design reasons. Too much of the data work that takes place in the NHS is for financial and performance reasons compared to patient care and service design. Most data/analytics teams are in finance/performance and this drives their activity. Clearly performance/finance should be part of their work, but service improvement, patient care, etc. should be the majority. The