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Comment on Clinical Information Standards Specification The vision for NHS Clinical Information Standards

  • Comment ID: 59
Access to data by clinicians for clinical purposes is necessary for efficient and effective care and explicit opt-in consent MUST be gained for any data processing and sharing. However, access by any other groups, as listed above, should be to FULLY ANONYMISED DATA ONLY. Pseudo-anonymisation is not acceptable as it has proven possible to reverse-engineer using external data sources, linking this to actual people. In addition, sharing of this data, and access to it would only be acceptable if fu