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5 comments.

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RespondentResponse DateDetails
«anonymous»

Comment on Clinical Information Standards Specification Figure 1: Patient information flow in the health and care system

  • Comment ID: 60
There is no way I will ever grant policymakers access to any of my personal data unless it is FULLY ANONYMISED. This includes location data which should not be detailed enough for reversal of the psuedo-anonymisation process to be even remotely possible. If necessary, I will inform my GP and any clinician with whom I interact, that they should not even record my data on a computer system!
«anonymous»

Comment on Clinical Information Standards Specification Figure 1: Patient information flow in the health and care system

  • Comment ID: 4
'Our vision of a 'learning ecosystem' treats the information recorded by health practitioners as an essential resource of the health and care system rather than a mere byproduct.' Then clinicians need to record things properly, how are clinicians being engaged with in orde to understand how they will implement SNOMED and to teach them what it is and how its used.
«anonymous»

Comment on Clinical Information Standards Specification Figure 1: Patient information flow in the health and care system

  • Comment ID: 5
How will snomed work in actuality in terms of how will clinicians use it in secondary care. Currently the doctor will write the patients information in the medical record and date it, If the clinician sees a patient 3 times in a day is is expected that they only enter anything that's additional or different from the previous visit to build up the patients story? Also a doctor will write the information they want to document in their own words and phrasing as this is quick. Is a doctor expected
«anonymous»

Comment on Clinical Information Standards Specification Figure 1: Patient information flow in the health and care system

  • Comment ID: 63
"Our vision of a 'learning ecosystem' treats the information recorded by health practitioners as an essential resource of the health and care system rather than a mere byproduct." I doubt any health professional has the time to record health information that will merely be a "byproduct". It is recorded because it is relevant to the care of the patient. If it is not relevant, it is unlikely to be recorded. Secondary uses are generally perceived to be a byproduct of process of recording data for i
«anonymous»

Comment on Clinical Information Standards Specification Figure 1: Patient information flow in the health and care system

  • Comment ID: 56
Patient consent does no appear to have been taken in to account. Unless we revoke GDPR there are legal issues to be handled. Figure 1 covers direct care up to regional level. Article 9 para 2h,2i and 2j allow access for direct care without consent. Beyond that, patient consent is needed for secondary use and machine processing (Article 9 para 3). Taking the public with us on this journey is essential if we are to avoid a re-run of previous problems with trust. I suggest a new section in this di